Migraine 3.0
I think I found a new version on the weekend.
Eight to twelve hours of:
Loss of speech
Loss of both fine and gross motor control (to the point of not being able to stand or grasp simple objects)
All thoughts and feelings triggered by external stimuli and visa versa. Quite surreal actually, but scary seeing bleeding zombie faces when someone speaks.
All senses crossed over. Sound is vision, vision is physical pain, pain is bright etc.
and my favourite, partial paralysis of the left side.
Then a brain reboot. Each sense cycles through a "startup". Whole body itchy (itchy bones are not fun), then in pain, then burning etc.
Finally sleep for 12 hours. Aftershocks for 12 hours.
I think I preferred the super painful/dark room ones from many years ago.
Eight to twelve hours of:
Loss of speech
Loss of both fine and gross motor control (to the point of not being able to stand or grasp simple objects)
All thoughts and feelings triggered by external stimuli and visa versa. Quite surreal actually, but scary seeing bleeding zombie faces when someone speaks.
All senses crossed over. Sound is vision, vision is physical pain, pain is bright etc.
and my favourite, partial paralysis of the left side.
Then a brain reboot. Each sense cycles through a "startup". Whole body itchy (itchy bones are not fun), then in pain, then burning etc.
Finally sleep for 12 hours. Aftershocks for 12 hours.
I think I preferred the super painful/dark room ones from many years ago.
Comments
I sure hope for your sake those don't happen too often
I hope yours clear up.
I'm actually unsure if I'm about to start a migraine today... eyesight is decidedly patchy :depressed:
Itchy bones sounds a lot less fun, :heart: jargo
Fingers crossed you are just tired.
Ya fingers crossed.
The vision is more like living in a surreal environment where nothing is nailed down. Things seems to swim in a world of clear thick fluid, where somethings are more solid than others. Really hard to describe the sensation.
The nice thing is when our pantry is done, it'll be the darkest place in the house. Just a little bit of light coming in under the door which could be dealt with quite easily.
the latest visual field issue that ive had recurrring for a good few days is that the whole world has a top right shifted skew applied to it. its like living in a Zaha Hadid world.
But my favourite in the past has been where my left eye saw in black and white while my right saw colour but red-green colorblind
I was recently in for a CT scan which they ran twice when different aura were presenting. Preliminary non-answers from the doctors included vertebrobasilar migraine or bickerstaff syndrome.
Previous scans a few years ago revealed that i have an infarction in my visual cortex which they explained away my migraines to (they jumped to this the moment i said i played rugby mind). Now they think it isn't that but that i have a vector between ENT infections and brain-stem inflammation...... they make it up as they go along methinks
Day 40 urbansurgeon?!! Ouch. I sometimes get that I'm tilted to the right. Why is it always to the right? My neurologist was pretty upfront. He said you get migraines. The come, they go and can mutate over time. Should stop in a few years. Perhaps when I'm 50ish. Yay? Might come back for a last party 20 years after that.
In a nutshell "Huh.. you get no warning signs.. well that sucks for you cause i cant' help you. Thank for stopping by."
The after effects last anywhere from 2 days to a week.
After reading this thread... I have to say, I'm one lucky duck not to have the events described by you folks. At least for now.
yeah.. synaesthesia, unilateral limb weakness, visual distortions and hallucinations, profound nausea, etc etc etc... and the pain. the pain, the p a i n.
seldom more than 3 days; usually 12-36 hours (ish). if i can get it under control before it gets bad, i can avoid most of the pain; the other symptoms do not abate, but often i can sleep it all off.
men, in general, seem to have more clusters of migraine occurrence than women. no one really knows why. i can get a rebound headache a couple of days later, but nothing like some of you guys deal with.
Bog.. i'd lean on that doc. there are plenty of helpful strategies,not the least of which includes a prescription for a small supply of low-dose merperidine and promethazine suppositories (no way you can swallow a pill at that point). low-dose, because you're not after the narcotic pain relief, but the action merperidine (Demerol) has as a muscle relaxant.. the promethazine is a combo sedative and anti-emetic.
this IS good company to be in. no one who hasn't experienced migraine can really know how it is. "bad bad headache" just doesn't cover it.
my best strategy... if there's nothing else... is to get really warm and stay that way. really REALLY warm. no laying down. relax with head higher than heart. mask all light and sound if they cause pain (always). let me reemphasize the warm.
x
Never heard of the warm part. Going to try that when the next event hits, which hopefully isn't for a long... long ... time. The dark dark place is nice though.
Am rugged up home right now. Couldn't face work today. The a/c noise (see other thread is just too much right now.
Spoke to my GP today. She kind of went white when I described the above head bender. Immediately gave me a referral to see a neurologist. Wants a brain scan of some sort.
Said next time call an ambulance. :awkward:
Words like "stroke" and "death" came up a little too often. :awkward::awkward:
GP got her in for a CT scan, results incoming.
However, we think that it was caused by her Mirena coil, had it removed immediatley, and she feels a lot better almost instantly. In her case, it's most likely the progesterone/oestrogen imbalance that has been messing with her. Probably totally unrelated to all of your above symptoms, but i wholly recommend getingt yourself into doctors/hospital for a full check up.
Hope you all are fine, and symptoms can be alleviated. Fingers crossed on the CT scan.
Glad she has found a solution meska. Fingers crossed she can stay that way.
Off to see the neurologist in a few weeks. The good professor is hard to get an appointment with.
Its funny about Dr's.. one may just dismiss a condition as a minor annoyance while others may consider it dire. At least ours likes to get to the bottom of things.
i love it when the docs go pale, though, don't you?
I'm not sure if "i love it when the docs go pale" is quite how I'd describe though. Does get your attention though.
p.s. Thanks for the terrifying AV malformation option. Does kind of cover pretty much all of my symptoms though. Including a few I thought of as unrelated. Though I do have a fist full of food allergies so hypersensitive cluster of arterioles might fit the bill too. I think I prefer the later.
If all clear then it's Epilim twice a day. Which is an added bonus as it might help with the bipolar. Yay for me
awe man!!!
well that just sucked.. the train of thought I was on just had a huge derailment. now I'm just rambling on about nothing in particular. does that make me a politician too?
yay for both of you!
Damn MRI is loud. The first 20 minutes I could cope with but the last 10 I was starting to lose my calm. Meds are not too bad. Crappy side effects but they are tapering off after 3 days. Fingers crossed all will be well enough to go back into training. Only got 9 weeks until the City2Surf.
At least I got to listen to music.
sometimes the side effects are worse than the condition, which really sucks.
good luck with the event.. keep us posted
Feeling pretty clear headed. First time in a very long time. Didn't realise just how foggy I've been inside my brain pan. Still getting pretty tired after the meds. Having to titrate up to double the dose tomorrow night. I guess another couple of weeks and all will be sweet. Just in time for skiing!!
Managed another run last night. 8km along the bay. Had my girl there on her new (very cute) bike. Managed to shave 10 minutes off my time (I've been very, very slow). Actually looking forward to the race instead of dreading it.
Thanks guys.
Had aura last night before bed so dosed up on painkillers and tried to get a good nights sleep.
I think I might have dodged this one, have a bit of a headache and still a slight patchiness in my vision though... let's see what happens
I'm off the mends for over a month now. Rough ride down as it was up but I'm all clear of the side effects now.
No migraines so far. Some symptoms though. When I look at my hands they are hyper real. Like CGI, very good CGI. Some fun light effects and the odd small headache.